• Hugo’s Story

    Getting my Spark Back

    In just a few days Hugo will finish his treatment. A thousand thoughts and feelings have been racing around in my head over the last few weeks. Many of them positive, but some feel negative and selfish. It’s difficult to…

  • Hugo’s Story

    The Big Questions

    After three years of treatment, I suspect many people are a bit lost with Hugo’s illness and treatment. Here are some of the questions I have been asked and a few others that I thought people might want answers to. …

  • Hugo’s Story

    Leaving Normality

    A couple of months ago, on the way back from a hospital appointment, Hugo asked me what it felt like when I had my bumpy taken out. Bumpy is our name for Hugo’s port-a-cath/central line. The little device that sits…

  • Hugo’s Story

    What happens next?

    During our last appointment at GOSH, our oncology nurse specialist answered the all important question – ‘what happens when treatment ends?’ I’ve asked many questions relating to this along the way. Always hesitantly, not wanting to look too far ahead,…