• Hugo’s Story

    Reaching Maintenance – Yay!

    Today saw us back at GOSH for a second attempt at starting maintenance.  Hugo’s rosy cheeks had gone and his bloods were up a little, so we were hopeful that this time would be more successful. It was good news,…

  • Hugo’s Story

    False Start

    So today we set off to GOSH for the start of the maintenance phase. Hugo’s bloods were taken on Friday and they were still a little low, but we’d checked with GOSH and they were confident they would increase enough…

  • Hugo’s Story

    Bye Bye Delayed Intensification

    Delayed Intensification, phase 4, is over, woo hoo! Unsurprisingly, Hugo and his daddy managed just fine with the blood transfusion. The colour is slowly returning to his cheeks and his energy levels that were so zapped during phase 4 are…

  • Hugo’s Story

    A New Kind of Strength

    So, as predicted, Hugo needs a blood transfusion.  He’s done well to get through Christmas and into the new year, but his luck has run out and it’s a visit to our local hospital for him today.  Henry has a…

  • Hugo’s Story

    Restoring a Little Balance

    Welcome to 2016!  Well we nearly welcomed in the new year from a hospital bed – another narrow escape.  Hugo’s temperature went up during the early evening.  It wasn’t quite high enough for immediate action so we kept an eye…