Interim Maintenance
Over the past couple of weeks Hugo has finished phase 2 of his treatment and started phase 3, interim maintenance. No treatment break, this time we were straight into it. We were given the rest of Hugo’s treatment plan, all…
It’s only hair
Given the enormity of what Hugo is going through it seems silly to be concerned about hair loss, vain even. But ever since his diagnosis it feels like we have been waiting. We were told it was going to happen,…
We’re going to the Zoo!
Today marks the 2 month anniversary of Hugo’s diagnosis. It feels like we have come a huge distance in that time. The immediate shock has been replaced with new emotions, equally as difficult, but perhaps less intense. We have found…
A Letter to my Son
Dear Hugo When we were at the hospital in those dark and difficult days after your diagnosis, the doctors talked to us about the barrage of drugs you would need to take. They tried to prepare us for what was…
Grandad on Duty
Yesterday saw us heading up to GOSH for another dose of methotrexate administered by lumber puncture. This was our fourth trip since being discharged and we have been starting to feel like pros with our routine. We know what time…
Consolidation
We are now 4 days into the second phase of Hugo’s treatment, consolidation, a short phase at only 3 weeks. As Hugo was unable to start the new chemotherapy drug, due to his low blood counts, his drug quota for…