Wonderful Giraffes
Day 95 of Hugo’s treatment sees up back at GOSH for high dose methotrexate round 3. As usual we receive a warm welcome from the wonderful nurses on Giraffe ward. We have been on Giraffe ward for all of our…
Relishing Normal
We have been having a lovely normal week at home. We’ve had the car serviced, been to Henry’s parent’s evening, I even managed to get my hair done. This is excitement these days, getting to be normal. In a couple…
A Constant Supply of Gingerbread Men
Since this journey began, I’ve found myself on occasions drifting into a kind of glazed daydream, pining for all the things we are missing out on since Hugo was diagnosed. I don’t want to feel sorry for myself, but sometimes…
A Mini Break
We have just experienced our first unscheduled hospital stay. I suppose this is what we have been waiting for ever since we came home. I suspect we are lucky to have made it this long. Infections are a very serious…